I am going home tomorrow! Yeah after 8 or 9 days that is music to my ears. The medicine Dr. Lamont put me on for Motility works great, maybe a bit to good. We are adjusting it the other way now. I am really trying hard to follow all instructions and be optimistic. I am very tired of being in here. I just happened to see Paige up here she is an Iselt Cell Transplant patient as well. She has been up here for a few days. I guess her Islet Cells are not working and she is now Diabetic. I really hate to hear that and wish she were feeling better. I hope all of you are good, I know that life can be rough sometimes so everyone hang in there!
I am still in the hospital. I had a scope procedure done today that turned out pretty good.. The results are slow mobility which we already knew about. The good news is they are trying a new drug on me to see if it does any good. Dr Lamont sat and talked to me for awhile and we have a new statedgy so I am crossing my fingers it will. I am getting a new med for the motility issue, it is brand new. My other Dr. went ahead and dialated my stomach. I will stay on TPN for awhile, I am trying to gain weight as usual. My Protiens are low and they are working at getting them up to a healthy level. I am sure there is more coming, I am tired and I will post later. I did get to see my little pumpkin this morning before I went in for my surgery/procedure. I tell you what I could be having the most dreadful day ever and little Sydney will put a smile on my face everytime.
Well I am in the hospital, the Doctor did not like the fact that I was running such a fever and had nausea, vomiting and diarreah as well. I am down to 101 lbs so he is concerned about nutrition. GEE what a thought I have had trouble with that forever. Sorry, I am a bit cynical today. I had a rotten night nurse. I am getting ready to go down for a CAT Scan of the abdomen and chest. Anyway I wanted to write you. I will let you know how everything goes. Thanks Lorie
I have not been feeling well at all. I have been running fever anywhere from 100 degrees to 102.7 - This has been going on since Saturday and I am having trouble with nausea, vomiting and abdominal pain which in turn just creates more diareah. I have not called the Doctor yet, I am afraid to go there. I am not sure what he will do besides admit me and get everything under control. It is frustrating because I have a ton of work, a new person coming on board in February, a trip for a few days in February and it is always messing things up. I stress about all of it. My daughter is going through some rough stuff right now so she does not need the extra worries either. Actually my whole family has a full plate right now. I can just sum it all up in two words it sucks! Hope all of you are doing well. I will post when I can and keep you updated. Talk to you soon...
I posted some new pictures it is named Christmas 2009. Once you open the file you might have to click on each one individually. I could not get them to flow right. Anyway, I thought I would post what I have.I am not to photogenic these days but my little Sydney is!!! Lorie
I have been doing some struggling with the same old stuff but seems like It comes in waves of severity. My tolerance is fed up with it right now. Seems like a average number of times in the bathroom is about 20! I woke up night before last at 1:30 AM and was up the rest of the night and day. I will be seeing Dr. Lamont soon, I have been waiting on this insurance but I should hear any day now. I will be giving them a call today to see if they can possibly give me a status. I have also been having some real issue's with Anxiety. I have a counselor I have shared some of this with and it really seems to be stemming from chronic pain issue's and some of the stuff that has happened over the years with that. I am in the midst of switching counselors and plan to dig deep on this subject. I hate anxiety attacks and really would like to be able to put them to rest. The weather here in Texas is ridiculously freezing! We were hit with an Artic Blast and it is about 5 degrees today with the wind chill, they are saying it could get as cold as Zero. In my mind I am like zero, 5 degrees, 10 degree's whatever it is flat cold. The wind is what makes it so horrible it just eats right through you! I am down to 102 lbs and I layer my clothing as much as possible. I have no fat to help protect me and keep me warm. I always wished I could lose weight years ago. It seemed if I even breathed food I would gain. Well, becareful what you wish for! I now can't put the weight on and wish I could! I would be excited if I could just gain 10 or 15 lbs. I sure know I would look healthier, I also know that my system can't absorb fats and we all need a certain amount of fat in our diet and for our bodies. The pain lately is more and I tolerate it as best as I can. I have to just keep telling myself it is better then were I was a couple years ago and even the years prior to my transplant. I lived in the hospital practically. I will continue to fight this and work towards better health. Each and everyday they make progress with stuff so I believe there will be even more answers out there. My hope is for a new enzyme because the one's they have now stink, my body seems to think so anyway. I really believe if I could get a good enzyme to stay in my system things would really turn a corner for me. Ok, I need to get back to work, it has been busy. I have been working on adding people to my team to help my business grow and to also take the pressure off of me. A lot of people ask me how in the world can I work and I have to say it is hard but it keeps me glued together. I have to have something to focus on and I do love working with people. Real Estate is a tough business but it is also very rewarding. If all goes well I think I will have a new team member in February. I have a really great guy getting his Real Estate license now. If any of you would like to receive my Monthly Real Estate newsletter just E-mail me (Loriebledsoe@aol.com)your address and I would be happy to send you out a copy! Need to run but I wanted to post and update everyone! Take care, Lorie
I hope this finds everyone doing well and enjoying there holiday season. I have had a great Holiday! This year is the first year in 3 years that all of my Kids were together again and our first with little Sydney! My parents were also here for 3 weeks which made it extra special. I always enjoy there company. Sydney is now 10 months old and growing so quickly, she is so smart and picking up so many new things. Ashley already got her switched off the bottle and on to a sippy cup. Sydney did not seem to mind at all, she still is on breast milk which is good but she is slowly switching her over on that as well. She has become quite the Na-Na's girl which I just LOVE! My Health is about the same a bit better at times but I am still unable to absorb fats. I will be going in to see Dr. Lamont after the first of the year to re-visit all of this. I have been dealing with insurance companies and I am currently waiting to see if I have been accepted into the Texas High Risk Pool. I have a limited medical policy right now that works fairly well but does not cover some of my perscriptions which is just killing me expense wise. It also only covers up to 30 days in the hospital per year. which I can knock out in one or two admission. The Texas High Risk pool is very expensive and have been giving me a hard time because I was able to get this other limited medical insurance. I just sent them a denial from Blue Cross and Blue Shield which would have been full medical & Prescription benefits but of course they want nothing to do with me! No big surprise there. This letter should get them everything I need to get accepted. I am just so frustrated with this whole situation. How are all of you? I hope you are doing well and not spending to much time down and not feeling well. I push myself to do as much as possible to try and have some sense of normalcy. I also try to not let on to much about the in's and out's of the daily hurdles with all of this. I must say it can be very hard at times and then I know I can't hide it. All in All if I look back to where I was 2 years ago today I was 98 lbs and being admitted to Baylor Hospital in Dallas for a bowel obstruction on New Years Eve. They had to wait 3 weeks to do surgery because I was not strong enough. When I look at everything in this perspective I am doing so much better. Work still keeps me very busy and makes it difficult to slow down. I have a lot fof foreclosure listings that just keep coming, they don't stay on the market long. I can normally get the majority of them sold in a weeks time. I am sorry I have not posted much, I have been through a lot over the last several months personally and I just have been a bit self absorbed in those issue's and trying to stay as busy with work as possible to help take my mind off of it. I will do my best to post more. I would love to hear from you all! Happy Holidays & Love to all! Lorie
I finally got a chance to add several pictures! It is labeled Ashley, Robert & Sydney's welcome home Party. I ended up doing a mixture some are not the welcome home party. I am waiting for my Girlfriend to send me more pictures of that, she took all the pictures. Anyway, Enjoy! Sydney is growing like crazy and is so precious! She also is saying Na-Na!!!
Hey I posted like 3 pictures. I journaled earlier and then I have been trying to post some pics. I only posted 3 but I will add to them. I posted 3 from the Welcome home party we had. I will do my best to keep adding to it over the next couple days. It is the second album at the top. Ok back to work for me! (((HUGS))) Lorie
It is hard to believe we are already entering fall, 3 months until Christmas just seems unreal! Everything here is caotic as usual. I am still super busy with work and trying really hard to help the kids find a house to buy. Ashley, Robert & Sydney are staying here with us, it is so great to have them here and to be able to see Sydney each morning with her bright smiling little face. It most certainly starts my day off great. I can feel horrible and then seeing her makes me smile. I also Love having Ashley back home, they are looking for a house to purchase but even with me being a Realtor it is hard to find one in there price range that is available. There are so many foreclosures out there, the homes that are actually seller occupied and move in ready for sale go really quickly. I watch the market like a hawk. There stuff is on a boat from Japan and will be here soon, we are trying to get them into a place so when it arrives it can go directly to there new home. We all love being together but they need to be able to get there own place and settle in. We had a huge welcome home party here at the house for them over the Labor Day Holiday. We had 65 people show up so it was a busy, busy weekend. We had a huge BBQ so it took Friday night, Saturday & Saturday evening to prepare for everyone on Sunday. I was one wiped out Mom by Sunday night! I also have been fighting the flu, I am doing better but it settled in my chest and I am still fighting a cough and all that. I am weighing about the same no real change there or any great news on all of the stuff that is going on with that. I am getting ready to make an appointment with Dr. Lamont to see about getting some blood work done and checking on the Bacteria issue in my stomach. The insurance coverage we have will be running out the end of October! I can't believe 6 months of continuation have already went by. I did manage to get coverage that started this month from a company called Cinergy. Has anyone heard of them or know much about them? I heard about them from my Mom and then have seen there advertisments on TV. I called and they are covering us and they are not ruling out any pre-existing conditions. I have looked at the policy and it is not as good of coverage as I have now but it is ALOT cheaper and will allow for me to get a second policy if I can find another company to be secondary. They are charging us $480.00 a month for our family VS the $1380.00 a month now which is so ridiculous and hard to manage financially. The big thing is they only pay up to $1000.00 a day if i am in the hospital and only cover me for 30 days of admissions per year. I hope I do not end up in the hospital over 30 days a year but with my track record it is very possible. I also know that $1000.00 a day won't cut it. My last stay was 13 days and it was $38,000.00. All of this really stresses me out but the good thing is at least I have some coverage to start with once this other drops off. I also have perscription coverage with this new plan and that alone will be a huge savings if I had no insurance my perscriptions run about $5000.00 per month. The new insurance does not cover all the meds I take but they cover about 75% of them. I am hoping I can talk to the Doctor and we can switch some stuff around so that I am able to have them all covered. I am also shopping for another policy to pick up the balance. It was no problem getting Cinergy to cover us so I am not sure if it will be an issue with a secondary company. I can always hope. I also checked out the Coverage on the hospitals I go to and the Doctors. Baylor Hospital is on there list and a couple of my Doctors are also. My Pain management Doctor is not on the list so it will be limited coverage on that. I am still checking on a lot of it. Carol I am sorry to hear Paige is not doing any better. Have that not figured anything out? Is she still in the Hospital as much or has she been able to stay out for awhile? I wish I had answers fo you. I keep her in my prayers all the time. I know the last few days I have been up at night and in the bathroom around the clock, it is exhausting sometimes. Diane, I am sorry finances are rough. I know the west coast has been hit really hard. When I went to Medford for the family reunion I could not believe how depressed the area was. Here in Arlington you have no idea things are bad, I see it in the Real Estate market with all the foreclosures and such but as far as people shopping, dining out, recreational stuff you have no idea. When we were in Medford the stores were dead the restaurants were empty and it was flat depressing. We went to the mall one day to buy a Birthday gift and it blew my mind NOBODY was there. I really saw how bad things are. I am going to try really hard to post some new pictures. I have to get to work but I will see what I can do so everyone can see how much little Sydney is growing! I will be thinking about everyone, you are in my thoughts and prayers Take care and as always I LOVE hearing from all of you. I will post again very soon!! Love Lorie
I am still super busy with work and trying really hard to help the kids find a house to buy. Ashley, Robert & Sydney are staying here with us, it is so great to have them here and to be able to see Sydney each morning with her bright smiling little face. It most certainly starts my day off great. I can feel horrible and then seeing her makes me smile. I also Love having Ashley back home, they are looking for a house to purchase but even with me being a Realtor it is hard to find one in there price range that is available. There are so many foreclosures out there, the homes that are actually seller occupied and move in ready for sale go really quickly. I watch the market like a hawk. There stuff is on a boat from Japan and will be here soon, we are trying to get them into a place so when it arrives it can go directly to there new home. We all love being together but they need to be able to get there own place and settle in.